Why we must talk about illness when it isn’t life or death

I want to take a minute to tell you why Professional Sick Girl exists. It’s true, I like to write; it’s my way of connecting with the world around me. But the reason I write about the things I do is to raise the profile of people with chronic illnesses, and the many different lives […]

A lesson in vulnerability

Or, that time I mentioned my wheezy-hamster-lungs in an interview. Unsurprisingly having a life-shortening illness can make you feel a tad vulnerable at times. It can also make you feel like a superhero when you defy the odds. But there’s one context that has always made me feel more vulnerable about having Cystic Fibrosis than […]

Sorry but I don’t like your air

I got offered a freelance role recently. Successful agency, a big new business win to work on and, it goes without saying, some financial security. I turned it down. I could almost hear the recruiter thinking when I told her my decision, “is she crazy or just plain stupid?” Of course, she was nothing but pure […]

“Do anything nice on your day off then?”

…Why yes actually, I spent a very engaging 6 hours in hospital taking part in a first-of-its-kind phase III clinical gene therapy trial. Could have done with an actual day off though, come to think of it. So I’m currently taking part in the UK’s only ongoing major gene therapy trial for Cystic Fibrosis patients. […]