How to plan a career when you’re predicted to die in 10 years

I felt guilty writing the title of this post. It’s not something I’d relish reading from a friend or loved one and I can only imagine what it’s like as a parent. But I think people reading this without lived experience of illness need to understand this feeling as much as they possibly can. I […]

When the brainfog hits you bad; a specialist’s perspective

I would expect, that even if you aren’t a part of the niche, tight-knit community of CF-related diabetics like me*, you will have experienced brain fog at some point in your professional career.  Or cognitive dysfunction, to give it its scientific name. Maybe it was a critical moment, in a big meeting as you pitched […]

What’s purpose anyway?

We’ve all read about the girl who has months left to live and is following her bucket list through to completion or the cancer survivor who lives each day as their last. I dont know what its like to truly live day to day, not knowing whether there’s another one, so I won’t pretend I […]