The Jekyll and Hyde life

Hooo boy. Illness. It is quite the ice breaker at a party. When I meet a new person I like to tell them at least once that I have a life- threatening lung condition. Sometimes I like to chat about the four different types of broad-spectrum potent antibiotics I’m on at any one time. If […]

The Tale of the CF Cinderella

Do you ever just stop and take a minute, to think about which Disney heroine you might have been in another life? Like many a millennial I often seek to take inspiration from Walt and shoehorn my experiences into the relevant cartoon princess. Say, If I were to sum up the experience of having Cystic Fibrosis […]

Health is everything

Good health is everything. So some people believe.   As humans  we structure our needs in that well-known colloquialism of ‘[insert life changing challenge e.g. having no job or experiencing a divorce] …but hey at least I have my health’.   I would argue that having no job or experiencing the break up of a […]

Illness isn’t inspiring.

Illness isn’t inspiring. I’ve often heard lines like “He’s so inspiring, I could never do what he does,” when someone expresses their admiration for a person suffering from a serious illness. It’s a nice sentiment. But I don’t think many people realise what they could do, if faced with an illness and having no choice but to deal with […]

Professional discrimination with cystic fibrosis, Part II: Sticking it to the man.

In January 2012, I went to Korea anyway. The previous summer I had posted a message about a Korean-English language exchange in a local oriental food shop. A few weeks later I got a call from a Korean student who was in England on a summer programme and wanted to get some conversation practise with […]