The Good of Ills #3: A Place of Rest
I’m sitting in hospital as I write this. For the last 10 years the odds of my words reaching you while holed up in a hospital were high. In fact let me share a hot writing tip with you; struggling to find a chance to focus and hit that deadline? Search out a quiet corner…
The Good of Ills #2: Vulnerability is a superpower
Even as I type the title I feel uncomfortable: this lesson is easy to tell, less so to show. The value of vulnerability is a principle that a lot of us appreciate, in theory. That doesn’t mean we like how it feels. Over the course of 10 years working, I went from not declaring my…
The Good of Ills #1: Sometimes you will get left behind
I am having a lot of sliding door moments these days. What would my life look like? …If I had applied to that job I badly wanted. If I hadn’t been afraid to try something physically demanding. If I had written that book when I said I would. If I hadn’t had that hospital admission…
The Good of Ills: An Introduction.
My life is unrecognisable. Unrecognisably good. I start my day without a coughing fit. It’s a refreshing new normal.
How to plan a career when you’re predicted to die in 10 years
I felt guilty writing the title of this post. It’s not something I’d relish reading from a friend or loved one and I can only imagine what it’s like as a parent. But I think people reading this without lived experience of illness need to understand this feeling as much as they possibly can. I…
Fear is not conducive to good work
Starting this blog was not easy. I used to struggle with the idea that future employers might pass me over for candidates who didn’t have a serious antibiotic habit going on behind the scenes. I kept CF purely in the personal life tab and didn’t think it was relevant to my work life. Of course, I…
Allow yourself a stumble or two
I moved to London late November last year all full of hope and expectations for the year to come. I’d got a new job and things were looking good. Since returning from Korea in March of last year I had worked as a contract Bank Teller amongst other temp roles. To begin with I didn’t…
“Do anything nice on your day off then?”
…Why yes actually, I spent a very engaging 6 hours in hospital taking part in a first-of-its-kind phase III clinical gene therapy trial. Could have done with an actual day off though, come to think of it. So I’m currently taking part in the UK’s only ongoing major gene therapy trial for Cystic Fibrosis patients.…