How to plan a career when you’re predicted to die in 10 years

I felt guilty writing the title of this post. It’s not something I’d relish reading from a friend or loved one and I can only imagine what it’s like as a parent. But I think people reading this without lived experience of illness need to understand this feeling as much as they possibly can. I […]

Fear is not conducive to good work

Starting this blog was not easy. I used to struggle with the idea that future employers might pass me over for candidates who didn’t have a serious antibiotic habit going on behind the scenes. I kept CF purely in the personal life tab and didn’t think it was relevant to my work life. Of course,  I […]

Allow yourself a stumble or two

I moved to London late November last year all full of hope and expectations for the year to come. I’d got a new job and things were looking good. Since returning from Korea in March of last year I had worked as a contract Bank Teller amongst other temp roles. To begin with I didn’t […]

“Do anything nice on your day off then?”

…Why yes actually, I spent a very engaging 6 hours in hospital taking part in a first-of-its-kind phase III clinical gene therapy trial. Could have done with an actual day off though, come to think of it. So I’m currently taking part in the UK’s only ongoing major gene therapy trial for Cystic Fibrosis patients. […]