…And another thing from this millennial

Technically, aged 25, I am a millennial. Glossing over the fact that this term throws together millions of young people- at a time in your life where a couple of years, for instance, can make the difference between a near affordable degree and one that will land you with a debt worthy of a small country- does it actually help anyone?

What’s purpose anyway?

We’ve all read about the girl who has months left to live and is following her bucket list through to completion or the cancer survivor who lives each day as their last. I dont know what its like to truly live day to day, not knowing whether there’s another one, so I won’t pretend I […]

Illness isn’t inspiring.

Illness isn’t inspiring. I’ve often heard lines like “He’s so inspiring, I could never do what he does,” when someone expresses their admiration for a person suffering from a serious illness. It’s a nice sentiment. But I don’t think many people realise what they could do, if faced with an illness and having no choice but to deal with […]

Project management and pills

On learning about my CF, an ex boyfriend of mine very kindly (and with only a small hint of panic in his voice) once asked how he’d know if I needed ‘help’. Would I suddenly clutch my chest and start gesturing frantically for him to call 999? Would I turn blue in the face and […]

Don’t mind me; I spilt some heparin in your coffee

Ah it’s that time again.  Home Intravenous Antibiotics and work. Always a tricky balance, but one made a lot easier for me this time by  a job I truly enjoy and that I can plan treatment around. Let me take you back a bit, to my last post but one, ‘fear is not conducive to […]

Nothing like a nasal potential difference test to teach a little patience

Patience and perspective come in handy in many professional situations. They’re also pretty useful qualities to have when a doctor is sticking a plastic wire up your nose while passing a tiny electric current through it to measure the transference of ions across your sinus cells. No, I don’t really know what that means either […]

Allow yourself a stumble or two

I moved to London late November last year all full of hope and expectations for the year to come. I’d got a new job and things were looking good. Since returning from Korea in March of last year I had worked as a contract Bank Teller amongst other temp roles. To begin with I didn’t […]

“Do anything nice on your day off then?”

…Why yes actually, I spent a very engaging 6 hours in hospital taking part in a first-of-its-kind phase III clinical gene therapy trial. Could have done with an actual day off though, come to think of it. So I’m currently taking part in the UK’s only ongoing major gene therapy trial for Cystic Fibrosis patients. […]