Tinder dates from a West London hospital

And now for something a little different. I’m writing a book, yup a real actual book with all the words in it. The working title is: Professional Sick Girl – The untold and unexpected lessons of a lifelong illness. Below is a short extract that explores some of the realities of luurve with a health condition. […]

Why we must talk about illness when it isn’t life or death

I want to take a minute to tell you why Professional Sick Girl exists. It’s true, I like to write; it’s my way of connecting with the world around me. But the reason I write about the things I do is to raise the profile of people with chronic illnesses, and the many different lives […]

The Jekyll and Hyde life

Hooo boy. Illness. It is quite the ice breaker at a party. When I meet a new person I like to tell them at least once that I have a life- threatening lung condition. Sometimes I like to chat about the four different types of broad-spectrum potent antibiotics I’m on at any one time. If […]

The Tale of the CF Cinderella

Do you ever just stop and take a minute, to think about which Disney heroine you might have been in another life? Like many a millennial I often seek to take inspiration from Walt and shoehorn my experiences into the relevant cartoon princess. Say, If I were to sum up the experience of having Cystic Fibrosis […]

A lesson in vulnerability

Or, that time I mentioned my wheezy-hamster-lungs in an interview. Unsurprisingly having a life-shortening illness can make you feel a tad vulnerable at times. It can also make you feel like a superhero when you defy the odds. But there’s one context that has always made me feel more vulnerable about having Cystic Fibrosis than […]

Health is everything

Good health is everything. So some people believe.   As humans  we structure our needs in that well-known colloquialism of ‘[insert life changing challenge e.g. having no job or experiencing a divorce] …but hey at least I have my health’.   I would argue that having no job or experiencing the break up of a […]

An appeal at the eleventh hour

It’s that time of year again. Oh, you thought I meant the election? Well, yes. But it’s also around about the time of year I end up in hospital for a 14 day course of intravenous antibiotics to treat the underlying and continuous infection in my lungs. By Cystic Fibrosis standards this is nothing; it’s […]

When the brainfog hits you bad; a specialist’s perspective

I would expect, that even if you aren’t a part of the niche, tight-knit community of CF-related diabetics like me*, you will have experienced brain fog at some point in your professional career.  Or cognitive dysfunction, to give it its scientific name. Maybe it was a critical moment, in a big meeting as you pitched […]