Just like you…but probably on more drugs
I am a 20-something woman living in London working as a digital strategist, who just happens to have a life-shortening lung condition called Cystic Fibrosis. I also have CF-related diabetes, because I hear all good things come in twos.
It’s hard to imagine living any differently. Sometimes I wonder how everyone else gets through the day without 30 tablets and an insulin injection every mealtime. When I see someone tucking into a tasty slice of chocolate cake I can’t help but think, ‘Ooh, I hope they’ve had some Creon with that.’
For those at the back who haven’t been paying attention, Cystic fibrosis comes with an average expiration date – I believe median life expectancy is the correct term- of 38 years. I turn 30 next year. While I have absolutely no intention of leaving on time (why change a habit of a lifetime?) there are a lot of ambitions I’ve yet to achieve. This blog chronicles my journey as I do so.
I write about things you probably already read about: work, life, health, relationships, travel, late night political debates in the hospital with your Phlebotomist, (…too niche?) but I am here to share a different perspective.
We hear a lot about illness stopping people from doing things. That’s because it does. But I don’t think we hear enough, about or from, people with lifelong illnesses living life; their careers, passions and pursuits. There are 15 million people in the UK alone living with a chronic illness. And while I write about a serious subject, I see no reason to be serious all the time. Trust me, life is too short.
I’m big on advocacy. Whether you have a chronic condition or not, I hope you can relate to my writing. The more I live the more I learn that a challenge is a challenge, regardless of circumstances. We all have something to gain from sharing and supporting others with their struggles.
I publish every fortnight on PSG.com.
I also write on Insta under @Sick.Notes. It’s about capturing and sharing – with a smile – the mundane moments many people living with a condition will recognise. Because bad poetry is my therapy.
And you can find me here @ellyafoster.